Data protection policy

Published on:

Valid from:

25.09.2023

immediately

This edition of the privacy policy is identical in content to the previous version. All adjustments are based solely on the founding of the German association Self-Help Tracheal Stenosis.

Validity of this privacy policy

This privacy policy applies to all websites of the Self-Help Tracheal Stenosis, published by Self-Help Tracheal Stenosis Switzerland:

trachealstenose.co m
trachealstenose.org
trachealstenose.ch
trachealstenose.at

Data collection, use and sharing

We collect your data exclusively via this website and by email. Your data will be saved as soon as you submit an application to join the group. Data on rejected applications will be deleted after the rejection.

We use your personal data solely to identify you and to inform you about activities, meetings of the support group, etc. Commercial use is excluded.

We will never pass on your personal data to third parties, including other members of the self-help group, without a legal obligation or your express consent. You decide who you want to contact and therefore which member of the association you give your contact details to. We do not keep any records of this.

If you leave the club, you can request that your data be deleted. Without an explicit request for deletion, your account will be blocked, your profile will be deactivated, and your posts in the forum and blog will remain. Only your display name, which you have previously anonymized yourself, will remain visible. This will be done at your request.

What data do we collect?

In order to become a member of the Self-Help Tracheal Stenosis Association, you must give us your full name, an email address and, if you wish, a telephone number. During one of the first contacts, we would like to verify your identity using an ID card so that we can be sure that you are the person you claim to be. We will store the copy of your ID card in your account for verification purposes. We also remember whether you have read and accepted the terms and conditions of participation and the privacy policy.

You provide all other information voluntarily on our forums or in audiovisual group chats.
The Self-Help Tracheal Stenosis Association does not process any other personal data itself, and certainly not any personal data that is particularly worthy of protection.

You are in control of your data

We will be happy to provide you with an overview of the personal data we process at any time. You decide how we should send it to you.

If you discover an error, we will be happy to correct it according to your information, unless you are able to do so directly via this website.

If you would like to have your personal data deleted without leaving the Self-Help Tracheal Stenosis Association, this will unfortunately be the same as leaving the association and we will delete your data immediately.

What are cookies and when are they used?

In certain cases, we use cookies on our website. Cookies are small files that are stored on your computer or mobile device when you visit our website. An opt-out cookie is stored on your device. If you delete your cookies, you must click the link again.

Cookies store certain settings about your browser and data about the exchange with the website via your browser. When a cookie is activated, it can be assigned an identification number that identifies your browser and the information contained in the cookie can be used. You can set your browser so that a warning appears on the screen before a cookie is saved. You can also forego the benefits of personal cookies. In this case, certain services may not be available.

We use cookies to evaluate general user behavior. The goal is to optimize our website. It should be easier to use and the content should be easier to find. It should be easier to understand and structured. It is important to us to make our digital presence user-friendly according to your needs. This allows us to optimize the website through targeted content or information on the website that may be of interest to you.

Most web browsers automatically accept cookies. However, you can configure your browser so that no cookies are stored on your computer or so that a message always appears when you receive a new cookie. On the following pages you will find explanations on how you can configure the processing of cookies:

Google Chrome for Desktop
Google Chrome for Mobile
Microsoft Windows Edge
Apple Safari for Mobile

Deactivating cookies may mean that you cannot use all the functions of our website. Visit the following website to prevent Google Analytics from tracking you on all websites (opt-out):

http://tools.google.com/dlpage/gaoptout .

Which cookies do we use?

You can check which cookies are used by each enterprise solution, third-party app, or third-party integration using Chrome's built-in cookies view. In Incognito mode, click the security icon next to the URL bar, then select Cookies.

Tip: Make sure you visit your website in incognito mode so that your browser does not detect irrelevant cookies.

Responsibility and data protection for linked content

The Tracheal Stenosis Self-Help Group checks the content of third-party providers as far as possible before these sites are linked or published. However, responsibility for this content, data protection and information security remains exclusively with the respective operator or provider. The respective data protection regulations of the accessed sites apply.
The Tracheal Stenosis Self-Help Group accepts no liability for false information, dubious offers or damage caused by possible data protection incidents involving third parties.

Data security

We are not a commercial company. Our data storage consists exclusively of member administration on the platform of our provider wix.com . Access is protected with a password and two-factor authentication. Only the system administrator and those responsible for member administration have access to the system.

Here you can find Wix.com’s privacy policy and the legally compliant data processor agreement.

Changes to the privacy policy

This privacy statement can be amended by the board of the Self-Help Tracheal Stenosis Association at any time and without prior notice, with a transition period of at least four weeks. Members will be informed of changes by email and forum post.

If a member does not want to accept the amended privacy policy, he or she must actively report to the board within the transition period. Without reporting, the new declaration is deemed to have been accepted.

If the declaration is not accepted, this will be deemed as resignation from the Self-Help Tracheal Stenosis Association at the latest upon expiry of the transition period.